Data protection policy

The Grace Charity for M.E. is extremely conscious of the importance of keeping all data it holds confidential. All persons who handle any data on its behalf have clear guidelines as to how that data must be handled.  We comply to GDPR regulations.


1 Fair and lawful processing

“Personal data shall be processed fairly and lawfully and shall not be processed unless certain conditions are met.”

This aims to ensure that individuals are made aware of how their personal data will be used and covers both the original obtaining of data, for both computer and manual files, and its subsequent processing.


2 Holding data

“Personal data shall be obtained only for one or more specified and lawful purposes and shall not be processed in any manner incompatible with that purpose or those purposes.”

This covers the identification of the purposes for which data is processed and the restriction of processing to those purposes.


3 Status of data

“Personal data shall be adequate, relevant and not excessive in relation to the purpose(s) for which it is processed.”

This requires that all data held must be justified in relation to the stated purpose for which it is held. In collecting data therefore, it is important to ask whether the data is really needed for the purposes concerned. If the answer is no, the data must not be collected. It is equally important to review the amount of data being collected from time to time to ensure that it is still relevant.


4 Accuracy of data

“Personal data shall be accurate and, where necessary, kept up-to-date.”

This requires that the data held is always accurate and, except in the case of historic data kept for archive purposes, up-to-date.

In holding data therefore procedures must be put in place (i) to ensure that data is accurate and (ii) to enable data to be updated.


5 Retention and disposal of data

“Personal data processed for any purpose(s) shall not be kept for longer than is necessary for that purpose or those purposes.”

This covers the retention of data for the purpose concerned and its subsequent disposal. No data must be kept for longer than is necessary to carry out the purpose concerned. The length of time will vary greatly with the type of data being held; in some cases it might be appropriate to retain it for only a very short time, in other cases it might be necessary to retain it indefinitely; some retention periods are even governed by statute.

Once a retention policy is in place, appropriate procedures to dispose of the data must also be put in place. Security is very important in the disposal of personal data.

If data is to be retained for archive purposes, the Third Principle must be taken into account.


6 Rights of data subjects

Personal data shall be processed in accordance with the rights of data subjects under GDPR.

This covers a number of rights which data subjects have with respect to their own data. These are (i) rights of subject access, (ii) rights to prevent processing, including direct marketing, (iii) rights of compensation for substantial damage or distress (iv), and rights to have data amended or deleted.

Subject access: Data subjects have the right to have access to their personal data. This is probably the most important of the data subject rights. It is also the right of which most data subjects are aware.


7 Disclosure of data

“Appropriate technical and organisational measures shall be taken against unauthorised or unlawful processing of personal data and against accidental loss or destruction of, or damage to, personal data.”

This covers both the disclosure of data and the unauthorised or unlawful processing of data.  Various measures must be taken to ensure that data is kept secure:

  • Technical measures: network security; the proper use of passwords
  • Organisational measures: the physical security of computers and files in cabinets; locked rooms; ensuring that computer screens cannot be overlooked.

Good back-up procedures must be in place and used effectively. These should include procedures to recover lost data.


8 Transfer of data

“Personal data shall not be transferred to another country or territory unless that country or territory ensures an adequate level of protection for the rights and freedoms of data subjects in relation to the processing of personal data.”



Privacy Policy


  1. Introduction

The Grace Charity for M.E. is committed to protecting your privacy and security. This policy explains how and why we use your personal data, to ensure you remain informed and in control of your information.

You can decide not to receive communications, or change how we contact you at any time. If you wish to do so please contact us by writing to us at 20 Dickens Close, Langley, Maidstone KENT ME17 1TB or via email at

We will never sell your personal data for any reason.


  1. About Us

Your personal data (i.e. any information which identifies you, or which can be identified as relating to you personally) will be collected and used by us in accordance with the purposes outlined in the Section entitled ‘How we use information’.


  1. What information we collect

Personal data you provide

We collect data you provide to us. This includes information you give when communicating with us. For example:

  • personal details (name, email, address, telephone etc.)
  • financial information (payment information such as credit/debit card or direct debit details, and whether donations are gift-aided)
  • information created by your involvement with The Grace Charity for M.E.

Your activities and involvement with the Grace Charity for M.E. will result in personal data being created. This could include details of how you’ve helped us by volunteering or being involved with our campaigns and activities.

Sensitive personal data

We do not collect or store sensitive personal data. However, there are some situations where this is necessary (e.g. if you volunteer with us). If this does occur, we’ll take extra care to ensure your privacy rights are protected.


  1. How we use information

We only ever use your personal data to:

  • comply with a legal duty
  • contact you with information of legitimate interest
  • protect your vital interests
  • for our own (or a third party’s) lawful interests, provided your rights don’t override these.

As an example, we use personal data to communicate with people, to promote The Grace Charity for M.E., and to help with fundraising. This includes keeping you up to date with our news, updates, campaigns and fundraising information.

We also use personal data for administrative purposes (i.e. to carry on our charity and fundraising work). This includes:

  • receiving donations (e.g. direct debits or gift-aid instructions)
  • maintaining databases of our volunteers, members and supporters
  • performing our obligations
  • fulfilling orders for goods or services (whether placed online, over the phone or in person)
  • helping us respect your choices and preferences


  1. Disclosing and sharing data

We will never sell your personal data.

We may share personal data with subcontractors or suppliers who provide us with services. For example, if you order something from The Grace Charity for M.E., your name and address will be shared with the delivery company.


As a charity, we rely on donations and support from others to continue our work. From time to time, we will contact members and supporters with fundraising material and communications. This might be about an appeal, a competition we’re running, or to suggest ways you can raise funds (e.g. a sponsored event or activity).


  1. How we protect data

We employ a variety of physical and technical measures to keep your data safe and to prevent unauthorised access to, or use or disclosure of your personal information.

Electronic data and databases are stored on secure computer systems and we control who has access to information (using both physical and electronic means).

How long we store information

We will only use and store information for so long as it is required for the purposes it was collected for. How long information will be stored for depends on the information in question and what it is being used for.  We continually review what information we hold and delete what is no longer required.


  1. Keeping you in control

We want to ensure you remain in control of your personal data. Part of this is making sure you understand your legal rights, which are as follows:

  • the right to confirmation as to whether or not we have your personal data and, if we do, to obtain a copy of the personal information we hold (this is known as subject access request)
  • the right to have your data erased (though this will not apply where it is necessary for us to continue to use the data for a lawful reason)
  • the right to have inaccurate data rectified


You can complain to The Grace Charity for M.E. directly by contacting us using the details set out above.  If you are not happy with our response, or you believe that your data protection or privacy rights have been infringed, you can complain to the UK Information Commissioner’s Office which regulates and enforces data protection law in the UK. Details of how to do this can be found at


  1. Cookies and links to other sites


Our website uses local storage (such as cookies) to provide you with the best possible experience and to allow you to make use of certain functionality.

Links to other sites

Our website contains hyperlinks to many other websites. We are not responsible for the content or functionality of any of those external websites (but please let us know if a link is not working).

If an external website requests personal information from you (e.g. in connection with an order for goods or services), the information you provide will not be covered by The Grace Charity for M.E.’s Privacy Policy. We suggest you read the privacy policy of any website before providing any personal information.

When purchasing goods or services from any of the businesses that our site links to, you will be entering into a contract with them (agreeing to their terms and conditions) and not with The Grace Charity for M.E.


May 2018