August 8th 2022 is Severe M.E. Awareness Day
On October 29th 2021, NICE finally released the new guidelines on ME/CFS, after a 6-month delay. We are thrilled that GET (Graded Exercise Therapy) is no longer promoted as a treatment; also that CBT is no longer promoted as a cure. However, the Royal Colleges still seem intent to push exercise on patients. This is an unacceptable practice and must be stopped.
For M.E. sufferers thinking about vaccines, including the Covid19 vaccines, there are some points to consider, especially as M.E. may be triggered or worsened by them: COVID19 HELP.
THE GRACE CHARITY FOR M.E. [Myalgic Encephalomyelitis] is based in Kent, England. We were approved for charity status in November 2006, and are based on Christian prayer. However, we want to help M.E. sufferers of any faith, or of no faith at all.
It is still a necessity to promote M.E. awareness, perhaps more so than ever, because sufferers and their carers still receive little recognition of this illness. In addition, a current lack of governmental support into biomedical research is not helping to find a medical cure.
We have compiled some documents on the DOCUMENTS page: “Saying No Can Be Positive” which empowers sufferers who wish to refuse psychological therapies. This paper may also help sufferers to maintain or obtain state benefits e.g., ESA (Employment and Support Allowance, formerly Incapacity Benefit) and care support via Social Services, through knowing their legal rights.
There is a Hospital Booklet, designed for both staff and sufferers, for use when a sufferer is admitted to hospital.
There is also a Dental Leaflet, with information for M.E. sufferers and their dentists.
For those considering becoming a patient at the Kent & Medway CFS/ME service (clinic) based at Maidstone Hospital, there is some information you should probably read first on the Kent GPs & Patients page.
We’ve produced a paper entitled ‘Knowledge in the hope of protecting M.E. sufferers from unnecessary sectioning’ in DOCUMENTS page.
We have compiled a Treatment Survey with both positive and negative feedback about treatments from sufferers. Please go to the SURVEY page for these results. This survey is ongoing, so please take part in it.
Also, a warning about the Liverpool Care Pathway, still practised today on the vulnerable as End of Life Care, with a booklet, No Hydration No Life, and a helpful letter for next-of-kin (see Hazel & the LCP).
Please note: we DO NOT promote or encourage GET (Graded Exercise Therapy) or CBT (Cognitive Behavioural Therapy) for M.E. sufferers. Neither do we promote the Lightning Process, Mickel Therapy, or the Reverse Therapy. However, we DO PROMOTE a biomedical perspective of M.E.
Please pray for our work, and for those who suffer from M.E., and for their carers.
If you wish to make a donation, please click here.
Bishop Graham Cray
The Rt Hon Ann Widdecombe
Jennifer Rees Larcombe
Professor Malcolm Hooper