The latest NICE Guidelines for M.E. were meant to be due August 18th 2021. They have now been delayed twice, which is unacceptable. There appears to be resistance by certain medics to the draft guidelines, which state that Graded Exercise will be withdrawn and CBT will no longer be promoted as a ‘cure’.
As a stakeholder, you can view our letter to NICE regarding the delay of their new guidelines on the documents page.
Please pray the initial draft guidelines continue to be published, which state that Graded Exercise should be withdrawn and CBT no longer promoted as a cure.
For M.E. sufferers thinking about vaccines, including the Covid19 vaccines, there are some points to consider, especially as M.E. may be triggered or worsened by them: DOCUMENTS page.
THE GRACE CHARITY FOR M.E. [Myalgic Encephalomyelitis] is based in Kent, England. We were approved for charity status in November 2006, and are based on Christian prayer. However, we want to help M.E. sufferers of any faith, or of no faith at all.
It is still a necessity to promote M.E. awareness, perhaps more so than ever, because sufferers and their carers still receive little recognition of this illness. In addition, a current lack of governmental support into biomedical research is not helping to find a medical cure.
We have compiled some documents on the DOCUMENTS page: “Saying No Can Be Positive” which empowers sufferers who wish to refuse psychological therapies. This paper may also help sufferers to maintain or obtain state benefits e.g., ESA (Employment and Support Allowance, formerly Incapacity Benefit) and care support via Social Services, through knowing their legal rights.
There is a Hospital Booklet, designed for both staff and sufferers, for use when a sufferer is admitted to hospital.
There is also a Dental Leaflet, with information for M.E. sufferers and their dentists.
For those considering becoming a patient at the Kent & Medway CFS/ME service (clinic) based at Maidstone Hospital, there is some information you should probably read first on the Kent GPs & Patients page.
We’ve produced a paper entitled ‘Knowledge in the hope of protecting M.E. sufferers from unnecessary sectioning’ in DOCUMENTS page.
We have compiled a Treatment Survey with both positive and negative feedback about treatments from sufferers. Please go to the SURVEY page for these results. This survey is ongoing, so please take part in it.
Also, a warning about the Liverpool Care Pathway, still practised today on the vulnerable as End of Life Care, with a booklet, No Hydration No Life, and a helpful letter for next-of-kin (see Hazel & the LCP).
Please note: we DO NOT promote or encourage GET (Graded Exercise Therapy) or CBT (Cognitive Behavioural Therapy) for M.E. sufferers. Neither do we promote the Lightning Process, Mickel Therapy, or the Reverse Therapy. However, we DO PROMOTE a biomedical perspective of M.E.
Please pray for our work, and for those who suffer from M.E., and for their carers.
If you wish to make a donation, please click here.
Watch the Parliamentary debates from 21 June 2018 https://parliamentlive.tv/event/index/3d63c39d-18f3-4cd7-8509-c91785dced98 and 24 January 2019 https://oneagleswings.us4.list-manage.com/track/click?u=41a7eaa2ba3e4da8a24976f98&id=2ba85a7912&e=969dbf2fe2 where MPs urge the Department of Health to take Graded Exercise Therapy (GET) out of NHS Guidelines for M.E. For a detailed comment, see note at bottom of Kent GPs and Patients page.
Bishop Graham Cray
The Rt Hon Ann Widdecombe
Jennifer Rees Larcombe
Professor Malcolm Hooper